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Old Wed Jan 15, 2014, 03:28 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Teke, I've heard GVHD can also occur once the immunosuppressive medications are reduced significantly or removed all together. For many, this occurs at around 1 year.

In some cases for localized GVHD, I believe there may be localized treatments available, such as eye drops. The doctor she sees for this should be able to properly evaluate & prescribe what is needed, unless her SAA Dr's suggest more of the Tacro. Perhaps the hospital wants to fully understand the eye issues before treating?

Your wife's & my 1 year date are just 1 day apart (mine is Jan 29). Big milestones for she & I .

Hang in there, it sounds like she's done quite well with no GVHD until now, as have I, so I think we've been very lucky with this. Though I too have on/off concerns about the unknowns of GVHD, I've met a couple of transplant patients who have been treated for various forms of GVHD post 1 year and continue to do extremely well and enjoy life to the fullest. This helps to put me a bit at ease.

Best wishes
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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