Quote:
Originally Posted by Julianna
Hi everyone... this seems like the place to be! 
I was diagnosed with AA in 1996 aged 20, and now at 34 - MDS, and I am preparing for transplant sometime soon. Should know more after this next Wednesday, my first appointment at the transplant unit.
A bit scarey, but bring it on I say! There's quite a few in the same boat. I don't feel so much like an alien now.
I am in Australia - not many of us here (my age anyway).
Take care all,
Jules |
Hi Julie/Jules,
Would you mind to tell us what happened in between 20-34 years? Were you still under treatment then or were you in a remission while under some form of treatment? Was it a relapse that caused you to decide on a transplant?
I'm also from Victoria, Au.
Thanks
Peter
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Peter Lim, Dad to Stan, age 17 at time of dx Feb 2002VSAA; tx. ATG, cyclosporine, predisone; alternative herbal supplm & shark liver oil, off all meds 5/2002 normal blood counts. Only on shark liver oil.
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