is pleased to announce expanded descriptions of aplastic anemia, MDS, and PNH that can help you learn more about these bone marrow failure diseases: what's happening to your body, disease terminology, how the disease is identified and classified, treatment choices, and how to help yourself.
Disease information pages:
MDS - Myelodysplastic Syndromes
PNH - Paroxysmal Nocturnal Hemoglobinuria
These pages cover the following topics:
Paroxysmal Nocturnal Hemoglobinuria
As patients and caregivers we may find it hard to understand a complicated and serious disease, one we may never have heard of before diagnosis, and the medical lingo we're hearing. Educating ourselves takes time and effort but it's very worthwhile. The more we learn, the better we are able to be full partners with the doctors on our medical teams, and to advocate for the best possible care. We encourage you to take advantage of these and other information resources, including the free educational materials
available from the Aplastic Anemia & MDS International Foundation (AA&MDSIF).