Thread: Sarcoidosis
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Old Fri Aug 24, 2018, 12:34 AM
Naive Naive is offline
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Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Sarcoidosis

I’ve been diagnosed with MDS by BMB. I’m currently stable with almost normal blood numbers. The only consistently very low line is lymphocytes. Mildly anaemic (was transfusion dependant until the last few months) mildly Leukopenic (used to be severe on GCSF).

I had a skin biopsy done on what the GP thought was a skin cancer but the results have come back today as Sarcoidosis. I’m now being scheduled for a whole heap of other blood tests, scans, ECG, eye exam, etc.

Obviously I’ve Googled Sarcoidosis and it’s signs, symptoms, prognosis etc. I see where it’s thought to be a T lymphocyte immune mediated disease.

I was wondering if anyone on this forum has been tested for or received a diagnosis of sarcoidosis too. Also if there’s any established link between auto immune diseases and MDS. Now I’m questioning my MDS diagnosis. SLE is common in my extended family.

I guess it’s a waiting game again until all the new test results are back.
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