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Hi JordanN,
I am so sorry for the loss of your dad. This disease is so frustrating as most cancers are. You are right, we are all grasping for whatever information we can get and realistic expectations. Your insight has been very helpful to me.
The doctor told my dad when he first began treatment that he gave him 10 months with no treatment. I know these time lines are not by any way set in stone (I'm a registered nurse) so I have some concept of the dying process. But, knowing now that neither of the agents used have had any effect makes his prognosis so much more dire. He does do some grazing, in regards to his food intake, but is taking in far less calories than what he should even with his limited activity.
I will try to be patient until we know for sure with his BMB results and continue to search for anything new. I thank you again for your time. Once again, I am so sorry for your loss.
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