Quote:
Originally Posted by KimO
5) Misdiagnosis is a posibility in nearly any disease -- especially one so rare. My understanding is that AA and hypo MDS are often difficult to tell apart. Diagnosis of AA is based on blood levels from CBC, along with cellularity level and cytogenics from a bone marrow biopsy. Without details of what those showed for your cousin it would be hard to know whether AA seems a reasonable diagnosis or not.
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I just wanted to emphasise this and make sure that their BMB results are checked over by another set of eyes before proceeding with ATG, because while it can work brilliantly on AA, ATG has no effect on hypo-MDS.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)