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The Story Continues...
Diagnosed on Friday with MDS. I'm a bit overwhelmed with this actually. Platelets still around 20. Other counts ok. So I'm off the Rituximab trial because I don't have ITP.
Nothing to be done at the moment, except get on with my life.... so be it. Like to know more about MDS though. I will read a few posts I think. Go back to the hospital in a month and see what happens.
Life surely is a rollercoaster at times hey.
Just had a question though... if my platelets are around 20, do I need to have a medical card or bracelet, for an emergency situation, like a car accident or something horrible like that?
Jules
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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