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Old Mon Mar 29, 2010, 07:36 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Hi Jules.

I also was first diagnosed with AA and then re-diagnosed with hypo-MDS. Those two are so similar that the line between them is often blurred. For me, there wasn't much difference in treatment between one or the other, and it didn't really change how I felt about what was wrong with me - remember your body is still the one it was before, it's just a different name that will hopefully help find the treatment that's right for YOU.

Sorry you had to stop the Rituximab midway through. I'm sure that's a bummer to be told it was for nothing.

melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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