MDS Progression
Wondering if low-risk MDS can change into high-risk? ...especially in younger patients. I read in the AAMDS Foundation info that this can happen to anyone diagnosed. Anyone experienced that progression?
My Hematologist said that the damage to my marrow now, may have been caused by my AA treatment. Does this give me an increased risk of progressive disease or not? Just wondering.
This watching and waiting is not fun! Is it best to just ignore it while I can... platelets still not much above 20.
Thanks for listening!
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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