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Julie's Adventure
Hello Julianna
The Leukaemia foundation in Vic provides transport for treatment is neded. We went to Peter Mac for a trial of Revlimid in 2007-8. We flew down each month from NSW. They are the top cancer hospital and do a lot of research and are happy to consult over the phone if you wanted a second opinion.
I have heard of secondary MDSfollowing other chemo treatments. it is bad that you are young but good that you may be able to get a BMT if needed.
Good luck
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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