Thread: New to SAA
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Old Tue Jul 5, 2016, 11:58 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Sarah,

Are you on Sandimmune or modified cyclosporine?

What are your absolute neutrophil count and hemoglobin levels?

Did you have a bone marrow biopsy done?

While on cyclosporine, the doctor should be checking your cyclosporine trough levels, at least initially, to get the right dosage while avoiding toxicity. I wouldn't wait 3 weeks to check this. They should also be monitoring your kidney and liver functionality.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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