Congrats on getting onto the Campath trial. I did it March of 2009.I have been transfusion free for 1.5 years now. Yes, my counts did go down first. And, yes, my transfussions were even closer together for a while afterwards, but my transfusions stopped altogether 3 months following the end of the trial, and by 6 months, my counts were good enough! I remain low on all 3 counts, but good enough for me to live a normal life. I play lots of tennis, (singles), even with my hemoglobin in the high 9's or anywhere in the 9's for that matter. My body just adjusted.
I hope it works as well for you as it did for me. Just be patient afterwards. It is hard, but for me, has been worth the wait.
Feel free to e-mail directly with any questions you may have.
lzieske@verizon.net
Best of luck!
Lisa