|
Hey Amber and Paula,
Greg is correct. You are more than welcome to contact me regarding Promacta.
My husband was their first guinea pig for the Promacta trial for MDS patients at NIH. He received Campath in the spring of '09 and later cyclosporine - both at NIH. He started Promacta in March, 2011. He had been transfusion dependent since 1/09 for platelets and red cells.
He hasn't had platelets since early summer and only one red cell transfusion in 10/11. They said it might help his red cells also which it evidently has.
Platelets this week were 48,000 - they had been as low as 4,000. Red cells have been holding around 9/10. While to some that isn't setting the world on fire but for him, it is. He is tolerating it very well and feels better than he has since his diagnosis in 12/08. According to protocol we'll go for a bone marrow biopsy in Jan.,2012 but I have to believe things are ok as he is doing so well and feeling so good. Will let you know.
Please feel free to contact me through the forums, e-mail - shcalvert3 @aol.com, or phone - 804-590-2313.
God Bless,
Sally
|