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I have no experience, and cannot advise on Aplastic Anemia, but I can understand your concern. Members on this forum are very supportive and may be able to guide you.
As far as doctors diagnosis is concerned, this seems to be something on which you may need to get alternative opinions including at AIIMS in Delhi and Tata Memorial in Mumbai. You can also meet Dr. S.H. Advani at Jaslok in Mumbai, he is one of the most experienced doctors in India. You can send me a pm if you need contact details.
Hope you will get a final diagnosis and treatment plan soon.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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