How are you doing these days? I'm curious, how quickly did you see results from the Danazol? I have moderate AA, hgb 8.9 right now, platelets 52 and I'm debating over getting another blood transfusion soon. Do you have the TERC mutation also? Thank you, Linda
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.