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Old Thu Dec 15, 2011, 12:56 AM
Robi1Knobi Robi1Knobi is offline
Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Greg & Maus Blogs

You guys have done a fantastic job on your blogs, enjoyed looking at them. Thanks for encouragements, tomorrow won't be a big deal, just a PFT (yay) and a walk test. I return to NIH Feb 14th for a day of lovely testing, then took money out of my 401K to go to NYC with my honey ), his surprise Christmas/Anniversary gift. If we don't live life now while we feel good, who knows what tomorrow may bring. Seize the Day!!
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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