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Old Tue Jul 7, 2015, 11:47 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 716
Hi Greentea,

You are receiving a lot of good advice here. I just wanted to chime in that while a platelet count of 33 is low in the normal world, in the MDS/AA world, in the absence of bleeding, it would be considered okay. My doctors wouldn't consider a transfusion unless my platelets dropped below 12k, in the absence of bleeding.

Platelets only last 5-7 days, and a person can become refractory to platelet transfusions at any time. So, getting them more frequently than necessary is discouraged.

Best of luck to you and your sister!
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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