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Old Fri Apr 6, 2018, 04:49 PM
Barb Barb is offline
Join Date: Jan 2018
Location: Columbus, Ohio
Posts: 28

Thank you for the update. So glad to hear your husband is doing well after all this time. It does give me hope as I prepare for transplant. I am working on getting into remission. My most recent labs show no periperal blood blasts, and no nucleated red blood cells. I am hoping that after my next round of chemo which starts next week I will be ready for my next BMB (never thought I would be eager to have another BMB ) so I can start the pre-transplant testing.

I get the wanting to get on with life after a while. I had been on here post MDS diagnosis but I did not come for years until I hit another scary time with the AML diagnosis. Thanks for coming back to update us. I am looking forward to the days when I do not remember all the drugs now, let alone the post transplant drugs.

Barb. Diagnosed MDS 5q- in 2006. Stable until 2018. Dx high risk AML complex karyotype with TP53 mutation. On Dacogen, moving towards transplant.
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