Quote:
Originally Posted by Sara J
It's good to hear from other people in the UK  My husband Rich was re-diagnosed with AA last year, after a spontaneous recovery as a teenager. He has been on watch and wait since last April 2011. Fortunately his condition is not bad enough to need treatment but he suffers from fatigue and insomnia. Thanks for all the ideas on how to help. Does anyone know of any specialists in the Uk for treating fatigue related to bone marrow failure?  |
Hi,
I dont think any specialists exist for fatigue, however, pacing your activities does help - being an occupational therapist i have learnt through experience this part of our training (grin).
If you have stairs in your home get Rich to climb them on all fours slowly - i find this less taxing on the heart.
Move slowly around the house - sit down and do jobs - take naps often - drink plenty of water or fruit juice (muscles get more tired if they are dehydrated). Insomnia... make the bedroom a haven for sleep, use lavender oil on pillows, blackout curtains, no tv's, gentle reading, hot milky drink, warm bath or shower, same time every night and get up same time every day (Just written a booklet on sleep hygiene for where i work) good luck xx Karen