[Sara J]

Hi Karen and Catherine,

Thanks for your replies. It's always good to know you're not on your own. Part time work is a possibility and Rich's boss has been very helpful and understanding. Another option to look into could be early retirement as this has been going on for over a year now and is an illness unrelated to his job. The frustrating part is, we don't know if Rich will feel better a few months or years from now. Can I ask, Karen, if you work full time, how do you manage day to day? It sounds like you have a busy job yourself.

As for the insomnia, there isn't a problem getting to sleep, rather than waking during the nght. It doesn't seem to change no matter how tired he gets during the day. Exercise doees seem to help though. Is it the same for you, Catherine? We were also told the fatigue doesn't always relate to blood levels, also his Hb levels are looking good. He has been referred for CBT councelling to see if that would help. However, the nhs waiting list is ridiculously long and he hasn't started yet. If it helps, I'll let you know!

Sara x