[topcow]

Hey everyone, let me start by saying that my son was diagnosed with MDS in 2010 but then last year the docs realized he actually has PNH. He is getting treatment now with Soliris.

But my question is about myself, not him. For over two weeks I have been getting the chills and running a low grade (100.00) fever every day. My labs show zero sign of any type of infection. My doc is puzzled, because my blood counts appear to be dropping also. Right now my RBC is at 4.0, WBC is 5.9, PLT 231, HGB is 11.3 (it has gone up from 10.3 since beginning iron supplement). I know none of my counts are real bad, but I am concerned about the fact that they are going down for no apparent reason, along with the unexplained fever. Any thoughts?

Yes, I may be paranoid about this due to my experiences with my son, but I feel like crap and really feel like something is not right.