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Old Sun May 17, 2015, 08:49 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
PS Kate - If your disease is in the leukaemia family, I'm shocked at the Foundation's lack of support. I find them wonderful up here in the Newcastle area. They pick me up and take me to have my infusions and for my haematologist appointments and are always helpful on the phone. It might be worth calling them and asking straight out if MNP comes under their umbrella. If not, they may be able to point you to another organisation which would be more relevant for you.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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