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Great to see your post and glad you're doing well so far - You may feel worse in a few days - but that should pass - try and keep moving and eating - there's always Rice Krispees. They should be giving you medicines to help prevent/minimize GVHD - so I am hoping you will be pleasantly surprised on that front. Be really careful about infections - take showers, make sure the nurses are diligent in cleanliness habits, especially when changing the dressing for your catheter - and sanitize all the surfaces in your room often - especially door knobs, table tops etc. I found cleaning a helpful ritual. Music was also helpful. Keep it boring!
Best wishes,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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