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Old Fri Feb 23, 2018, 04:07 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Hello everyone,
Thursday appointment went fine. Though still high, my liver numbers are stable, not sky rocketing anymore.

I was referred to the eye doctor in the Eye dept of the Hospital, and she also pronounced GVHD on both eyes.
Since it is a GVHD issue, she said what she could do was help the eyes feel comfortable, not CURE them. Besides steroid drops, she prescribed topical eyedrops containing hyaluronan 0.1%.

She said it all comes down to the Hematologist, see how he deals with my GVHD. Cataracts occur in about 40% of transplantees.

It's nice to have an eye-doctor who understands GVHD.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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