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Hello there! I'm also a youngish one with MDS! Some Drs can make the whole process difficult unfortunately. This disease can be a very long road, particularly for diagnosis to start with & then waiting around to wait for counts to go wrong before they will treat you.
MDS can be agonizing like that & when you're young can be plain frightening. I'm so sorry about what you've been through already. Try & remain positive & hang in there. I'm around if you need to chat more. And there's lot on here to ask questions to.
For now, just try & chill. Waiting for results is always hard. But be prepared for a long road ahead. Even a long road on uncertain WAITING. Bless you!
Jules
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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