Well, we got a call today from NIH in Bethesda and it was NOT the call we wanted to get. After going up there last week for evaluation and BMB, they called today and said Al's blast numbers are back up to between 10 and 15 and he is not eligible for the Eltromobag trial. So after picking ourselves up - AGAIN - we are searching for another trial. We are looking into Moffitt as they offer the same drug with different criteria. But of course it will all depend on (1) how our insurance is going to work (right now we're waiting on a "out of network authorization" from our primary oncologist here in Georgia; (2) what treatment if any the Moffitt doctors recommend if and when we are able to go there; (3) what our other options are and we are still working on that.
Can you tell I'm a bit out of it? Sorry, just have to have a small pity party. We were so hopeful that he would be able to get into the trial at NIH.
Hopefully, since one door has closed, another one will open. I'm trying so hard to keep the faith. Our plans are not always God's plans.
Would appreciate any thoughts, suggestions, and as always, prayers.
Linda