Hi Jill,
You have already got much info about your low counts. Perhaps you could ask for Neupogen or a similar drug for the low WBCs. Then you have probably read info to neutropenic patients. Here is a quite good link about avoiding infections:
http://www.cancercenter.com/newslett...newsletter.cfm
Since I had neutropenic fever (almost sepsis) 2007 I live like I have neutropenia though I take 2 Neupogen injections/week and have normal WBC.
You know that there are a lot of drugs specially pain killers that can decrease platelets.
Then there are 2 drugs for patients with a special type of disease with low platelets (Immune Thrombocytopenic Purpura). The drugs are Nplate and Promacta. Both are in trials for MDS. Nplate har given some MDS patients increased blast cells/AML and I should not take that drug. One member of Marrowforums is taking Promacta for his low platelets since June 2009 with good result.
Hope your counts will increase
!
Kind regards
Birgitta-A
70 yo, dx MDS Interm-1 May 2006, transfusion dependent from dx, Desferal and Exjade for iron overload, Neupogen for low WBCs.