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Exjade
Hi Marlene,
My doctor is a specialist in MDS and he told me more than 2 years ago that Desferal is a better drug for most MDS patients due to adverse reactions leading to decreased counts both with Exjade and Ferriprox (not approved in the US).
The drug companies tell us that many MDS patients get lower counts due to their disease and not because they can't tolerate Exjade or Ferriprox. We will see what the FDA is going to find - hopefully many of us will be able to take Exjade but it must be carefully monitored.
Kind regards
Birgitta-A
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