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Old Tue Jun 19, 2012, 11:10 AM
imvalfan imvalfan is offline
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Join Date: Jun 2012
Location: Schenectady, NY
Posts: 6
Unhappy Worried about Mom

My mother was diagnosed with MDS about ten years ago when she was 75. She has had several treatments from steroids to thalidamide to vidaza and dacogen. Vidaza put her in remission for 2 years. Her oncologist/hemotologist started revlamid treatments but stopped after my mom platlets dropped and was hospitalized with pleuracy on her left lung due to CHF. She also has Afib. She's been in the hospital 3 times this year with the fluid buildup and low red counts and she is getting weaker by the day. Her appetite isn't good and she sleeps most of the time. I live closeby so I see her every day. I am worried about what to do since she doesn't want to go to a nursing home. The dr has mentioned hospice to me once so far but I am afraid she won't accept any help since she doesn't like people coming into her home she doesn't know. We don't have any nurses in the family and don't know any either. I don't know what to expect and need some giudance. I hate leaving her alone.
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