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Hi Ashleigh,
Congratulations on your rapid response!
As TASHMAC suggested, be cautious about tapering your cyclosporine early (before 6 months). Your bone marrow is still very fragile, and although you may have dramatically reduced the immune attack, it still will take time for your marrow to be strong enough to fight the remaining smaller attacks on its own.
When you do start tapering, do it very slowly and get your counts checked more frequently. Halt the taper if your counts start falling.
There are many horror stories of people losing there response from tapering cyclosporine too soon or too fast.
Best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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