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Hi Alyse,
At what point did you start tapering your Cyclosporine? How long were you tapering and at what rate? Also, how old are you?
One of my doctor theorizes that the marrow must be retrained to keep the bad cells in check and that longer term cyclosporine use helps facilitate this.
Of course, this doesn't explain why some people can achieve a good durable response with ATG and no Cyclosporine at all...
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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