[Sue&Dave]

My husband has not started treatment yet - very likely it will start soon. But in the past 3-4 weeks he has had the following symptoms: intermittent fever, headaches and extreme fatigue. His counts, while low, have remained in the same range since October, so we are not attributing it to a plummet in his counts. He has had a complete work up and the local hemo doesn't have an answer. The scary part of this is over the summer those very same symptoms appeared prior to him being diagnosed with a brain empyema (infection) post operative for 2 subdural hematomas. We have neuro involved and CT and MRI are negative (at this point). We know that his immune system doesn't respond like others and he could have a recurring brain infection that just hasn't presented itself yet. He was relatively fine up until just before Christmas when he hit a wall. Basically walking 2-4 miles a day, puttering around the house, etc. Then the fatigue and headaches started. Headaches have subsided somewhat, but chills, sweats and intermittent fever have taken over. So, has anyone experienced similar symptoms without being on treatment? I am really hoping this is an MDS issue instead of his brain again.