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Old Fri Aug 16, 2013, 10:31 AM
Peachy Peachy is offline
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Join Date: Apr 2013
Location: Colorado Springs, CO
Posts: 59
Low white count and starting Vidaza at age 68

Greetings from Colorado -

When I last posted in June my husband were on our way for a 6 week trip before starting Vidaza. We were at low altitude and he felt great so we skipped having our regular blood test. On our return his HGB had dropped to 7.6, WBC 1.9, NEU (ANC) 1.0. He was then given 2 Units of blood and an Aranesp shot. One week later his HGB back to 9.1, but his whites dropped - WBC 1.0, NEU (ANC) 0.68. We are to start Vidaza on Sept 9, as we are having 30 folks for dinner in a couple of weeks. Dr. suggested we wait until after the party.

Dr. also related that his counts would drop with Vidaza. I’m not sure what happens if his whites drop below 1.0. Dr. has not suggested any shots for increasing white cells and gives the impression that they may not do much. My husband has been reading about Neupogen and the bad side affect it may cause. Not sure where to go from here and not sure how we can even start Vidaza with his white count already so low.

We realize we will have to be much more careful when around people, as risk of infection is high and lucky he did not catch the cold I had 2 weeks ago. This is the first time I have been really scared since we first heard of his change in diagnosis to RAEB 1. We seem to feel that MDS is taking a stronger hold on him. We have done so well with Aransep, but now all is changing.
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Husband 69 dx MDS/RARS 4/2012,Arenasp 2013; dx RAEB-1 5% Blasts - transfusions, Vidaza - BMB 12/2013 35% blasts - dx AML M6b (Pure Erythroleukemia) - Induction/Consolidate complete Aug 2014 - BMB 5%; Not accepted for BMT ; New BMB 18% Blasts with dropping whites and platelets avg HGB 9
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