View Single Post
  #2  
Old Mon Dec 31, 2018, 06:40 PM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
I have mostly seen MDS and AA on this website, although there are some people like me that had fibrosis with their MDS. I also happen to be taking JAKAFI, but for GVHD post-transplant. If you search this site, I recall somebody referencing a website that is more dedicated to MF, PV and ET.
Dan
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote