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Old Wed Sep 16, 2009, 12:37 PM
Vera W Vera W is offline
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Join Date: Jan 2009
Location: Colfax Ca
Posts: 152
Questions

Hi Beryl, A 10/10 match is always the best have you tried researching on the internet?There is a lot of info on typing , I am no expert and it would be hard to explain all the nuances. We live 500 miles r/t to San Francisco, not that close! There are alot of assistance programs available through the Lymphoma/leukemia foundation and they are very EZ to get, our insurance allows us some housing and food but no mileage. It costs $22 a day to park at UCSF but they give you a handicap Placard and it is free. However we got $450 from the L/L foundation already for mileage. We happen to have a house to house sit fall in our hands, but there is usually low cost housing near by. Check to see what your insurance will provide. In a lot of cases you only have to stay near by for a month. It all depends on your progress. The work thing is a hard one, you can collect state disability and sometimes Federal. Fortunately for us we have a home office and we get paid even if I don't work and my husband draws a disability from the Police Department that pays our house mortgage. Hope this helps.
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Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09
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