View Single Post
  #3  
Old Wed Jul 27, 2016, 11:05 AM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Quote:
Originally Posted by lisa3112 View Post
Another question is my doctor is doing research on a new bone marrow testing machine. He said this test revealed I had 2/200,000 cells had mutation runx1. He therefore wants to do a biopsy (nearly up to double digits). He said if this test didnt exist he'd be completely happy and say I was in remission. I feel like a bit of a guinea pig and unhappy about having another biopsy. He himself said they don't really know what this means as its all new. What would you do?

Thanks, Lisa.

Hi Lisa,

I would do the BMB...but maybe a little closer to when you would normally get one.

It does seem like the purpose would be to contribute to research, but if you are understandably tired of being poked and drilled right now, I would delay the biopsy 6 months (or whatever your BMB frequency is). The machine will still be there
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote