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Old Sun Jun 8, 2014, 04:51 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Hey Linda!

Sorry to hear about the fibrosis. I reckon it goes along with this odd mutation.

Glad to hear your Hgb is holding up. Mine is steady at 10.9 for the past few months. Like you, I have low platelets, but mine tend to swing low for a while, then back up, from the 60s to the 120s. Currently mired in the 70s.

Hope your NIH visit goes well and the fibrosis quiets down.

Take care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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