[Casper]

I had been taking eculizumab (Soliris) for PNH for about 2 years and my red blood cell transfusions were down to once every month or two.

The pharmacy missed a delivery, my medication was 6 days late, resulting in a need for transfusions every 2 weeks. That was 2 months ago, and I still have not recovered. My other blood counts dropped as well.

Anyone had experience recovering from a missed dose?

Thank you.