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Old Sun Jun 2, 2019, 02:05 AM
Stevie K Stevie K is offline
Join Date: May 2019
Location: Phoenix, Arizona
Posts: 3
Thank you, Marlene! The link did work. Iím glad to see someone had a positive response symptomatically. Iím currently in the phase of trying to find a provider that will prescribe it to me. So far my hematologist has just deferred me to following up with a rheumatologist for their input.
Stevie , age 31, dx AA (3/2016) and PNH (10/2017), on eculizumab (since 12/2017) with limited improvement in sx and CBC; various non-pharmacologic modalities and healthy lifestyle habits have aided better QoL
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