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Old Tue Jun 4, 2019, 04:24 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 138
Hey Stevie K. In my opinion (I am not a doctor, just a patient) BMT may be an option for you. Since you have both AA as well as PNH, you have 2 debilitating blood disorders that are keeping you from leading a normal and healthy life. On the positive side, you are still relatively young, and as you prob. know, PNH is usually detected in people close to your age. Being young will aid in your recovery if such an curative treatment plan is chosen. In addition to your current physician(s) you may also have other specialty clinics in your area who can advise you. There are many online resources available as well. If you search my user name you will find many posts from me in respect to my PNH journey and treatment plan implemented by my HMO as well as a specialty clinic affiliated w/ a hospital with a transplant program.

Good luck in your treatment

Mario
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MARIO, 46, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD.
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