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Old Thu Oct 31, 2019, 06:05 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 587

I am very sorry that you have experienced this transformation to AML. I went from being very stable and 2% to 3% blasts to over 16% blasts in my peripheral blood. While it may not have been classified as AML, I had a bone marrow biopsy 2 months earlier that showed me as stable.

I went into transplant about 3 weeks later and am fortunately still here. I was being treated with vidaza at the time of transformation.

I wish you the best moving forward.

MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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