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Old Sat Nov 23, 2019, 06:53 PM
maggiemag maggiemag is offline
Join Date: Sep 2012
Location: Cincinnati, OH - United States
Posts: 92
Cheryl, I am also shocked! After being stable for so long, what a stunner. And all you had was a modest drop in platelets to signal a change. Wow. Well onward you will fight I know. I have heard good things about Venetoclax (sp?) with AML. Hope it's available where you live. Here they do transplants up to 75 if your overall health is good. Have you contacted other large medical centers? Maybe they have changed their limits??

Have faith and courage, and stay determined. We will be here for you whenever you need us.
Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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