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Old Mon Nov 25, 2019, 04:19 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 840
Thanks so much for the encouragement, Mags. My main symptoms are mild dizziness and nausea, and of course weakness and tiredness at times. I'm still able to continue with life as I normally live it but I can tell that this isn't going to last. My blood results are deteriorating a little with each fortnightly test. Last Wed they were Hb 9.4, WCC 0.7, neuts 0.2, Hct 0.272, Lymphs 0.3, platelets 78, MCV 105.

I think the only treatment available at my hospital is Azacitidine. Depending on my karyotype and the cytogenetics I may have to explore other options.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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