Hello there at last! Well I made it thru 6 cycles of Azacitidine and have gone into remission. Thanks for all the encouragement folks. It was a very rough road and I many times I ended up in hospital from side effects or infection.
I had 4 weeks off after cycle 6 and have just finished week 1 of a new regime of 5 days every 5 weeks. Hopefully Iíll be better on this. So far so good!
I hope youíre all doing well.
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.