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He is taking wheatgrass which helped him reduce his ferritin from 2500 to 750 in couple of months. I hope this trend continues. He got his BMB done twice and they confirmed MDS RCMD everytime. One of the doctors told us that for non del 5q cases revlimid might work for only about 20% of the cases. Is that true?
Secondly, is clinical trial a good option if he can be accepted in US?
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Father 72, diagnosed MDS RCMD June 2011. HGB 5.5, WBC 7.2, Plt 400 Cytogenetics Normal. Blast cell count 2% ( July 2012 ). Currently on Danazol, Ferritin 750
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