[GoingOcean]

Hi Everyone,

My husband, Steve, was diagnosed with AML a few months ago, with underlying MDS. I never saw anyone get that sick, that fast. Really shocking. Went through induction therapy and (as far as we can suss) in remission from the AML.

Steve's doctor isn't very clear or specific regarding the MDS except to say that the AML will come back at some point.

Very aggravating attitude from his heme oncologist - makes me want to smack him with a herring.

Steve is currently getting azacitidine (sp) 5 days a month and gets transfused at least twice a month (sometimes more) - I'm going to try to pin the doc down to what the rating is for Steve's MDS - wish me luck in not strangling his doctor...lol.

Have any of you had (or are having) this experience with your MDS?

What should we be asking now?

Thanks so much for being here - so many of your stories are so inspiring - it's comforting to know that there's hope for many.

Kat "GoingOcean" McLaughlin