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Lost
Try Vidaza--there have been some studies where it may have a positive affect on AML....I tried it and it wasn't bad...I feel it prolonged my life somewhat, but then I had to stop....
Everyone on this site will tell you what an emotional roller coaster dealing with a blood disorder is! Virtually everyone is on the same train but in a different car....each one of us has unique experiences....
Your brother has had quite a time of it, and he is so young...how does he feel?
Keep on trying...where there is breath, there is hope!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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