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Old Sat Jul 1, 2017, 05:33 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
Happy re-birthday to me

Today marks my 3rd re-birthday. the good news is all my numbers are in range or very close. The transplant took and I have no tests that would indicate MDS. My oncologist says he is always happy to see me because I am among the best living examples of a success story.

I still have mild to moderate GVH of eyes, mouth, throat, scalp. While annoying I have no problem living with them or taking the 31 pills I take every day.

My more serious side effect of the transplant is the adrenal failure that was most likely from the mega doses of prednisone that I ingested. It leaves me felling dizzy for half the day and a blood pressure that swings wildly from 65 to 215. Doctors are trying to control with little success. Statistics say that without a transplant I would be pushing up daisies now. So I take what I can get, no regrets.
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