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Old Wed Jul 5, 2017, 01:11 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Ray, congrats on 3 yrs! I had my 5 in December for PNH. I still have some fairly mild GVHD, but it seems to be slowly going away. I feel abt 1000% times better than I did for a VERY long time when I had PNH but tried to ignore the systems until I couldn't ignore them any longer! We all wish you continued success in your recovery.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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