Quote:
Originally Posted by Jodi L
He's trying so hard to be "normal" but he's not and I see from this forum that he never will be back to "normal" which just makes me so sad.  But normal is something different for all of us.
Jodi |
Hi Jodi,
Try not to get too discouraged during these early days post-ATG. Your son is young, and he is an early responder. So, the odds are strongly in his favor for a good recovery. As his marrow recovers, his fatigue will diminish, and as he weans off the drugs, the side effects will also go away. If all continues to go well, Aplastic Anemia won't define his life, but rather it will be a source of inner strength for him. He'll go on to do all the normal things that he use to do. It gets better...it just takes time. 
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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